Testimonial from a patient with Hypermobility Ehlers Danlos Syndrome -
I just wanted to drop you a line to thank you and let you know what a positive experience it was to bring XXX to meet you last night.
Despite the initial relief after seeing Anna, XXX has been getting progressively more ‘down’ about her health. Her fatigue had worsened (I wonder if she finally felt she had ‘permission’ to be exhausted?) and her attitude was heading in the more negative direction. By the time we got to you she was irritated, miserable and struggling to see the point.
You turned it round within 10 minutes and I was quite emotional as I listened to you convince her (us) of her strength and abilities. She liked you very much and I am sure this will all translate into a commitment to her exercise and the results this will bring.
XXX has headed off to sports day this morning convinced of her ‘superpowers’ rather than fretting over what might hurt by the end of the day.
We both very much look forward to working with you to help her get stronger.
With heartfelt thanks
Mother of XXX