"It was about 8 years ago that one of our hypermobile patients told us she had POTs and Ehlers Danlos that we really increased our reading and awareness of this syndrome. We can’t thank that patient enough for her part in opening our eyes to the spectrum of EDS and how hidden it was as a condition, and for bringing in the research papers and information to share with us. From then it has been a learning journey and this conference brought all our pieces of the EDS jigsaw puzzle together."
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